Tag: child death
Walk ‘n’ Roll for MitoCanada
On September 24th, our friends and family are walking for MitoCanada in Charlie’s Memory. Leigh’s Syndrome is the mitochondrial condition that so cruelly stole Charlie from us. The mitochondria are the powerhouses in our body and account for 90% of the functions required to sustain life in our body. In most cases exercise/movement is a…
Charlie’s Story
Trigger Warning: Hospital details, death, Charlie’s final days. Photos – happy and hard ones. It’s amazing what you will take photos of when it’s the last photos you will get to take of your child. I didn’t share the most painful ones. We have a diagnosis now officially for Charlie confirming Leigh’s disease. I have…
2 months gone.
The hardest part of it all was the end. When everyone was gone. I started going through the pictures and the pain of you not in your own birthday pictures hit. The evening was painfully quiet.
Charlie’s “Untapped Potential”
Hey little manWere you at recital on Sunday? I didn’t have any screamingly obvious signs but that day I knew you were. Mommy hasn’t danced in a recital since I was like 4. I was getting a little nervous because ever since you’ve been gone I’ve been having knee pain. There were 4 shows on…
I’m waiting for this sky to fall, I’m waiting for a sign
I can do hard things. I can do hard things. I can do hard things. I can do hard things. I can’t do this. I’ve said it before and I will say it again. I hate Wednesdays. Last week was an incredibly difficult week. Miss Alyssa always reminds dancers to remind themselves “I can do…
I’ll put you on the map, I’ll cure you of disease.
Everything happens for a reason they say. Your death doesn’t make sense but maybe there are some things surrounding your death that did happen for a reason. The above picture is the last picture I took of you before you went to the hospital. It was one whole week before I had to take you…