Category: Uncategorized
Charlie Had COVID
I saw a post tonight that pushed me to write this. Something that has been weighing heavily on me since fall hit. “Has anyone’s 21 month old had COVID? How long did it take for them to recover?” He didn’t. He died. Our family caught COVID at the end of February lasting into the beginning…
Privilege and Isolation
I’m going to write something not everyone will agree with because privilege is an interesting thing. The world knows there is a horrible genocide happening. It’s not new but it took some extreme circumstances to get the attention of most of the world. As such, our social justice warriors in our lives with their good…
I Didn’t Sing to You Enough
My dear sweet Charlie baby, you musical little boy. I’m sorry I didn’t sing to you more. I sang more to you through tears and a cracked voice while you were in the hospital and now while you are in Heaven than I did the whole time you were alive and that upsets me. I…
Walk ‘n’ Roll for MitoCanada
On September 24th, our friends and family are walking for MitoCanada in Charlie’s Memory. Leigh’s Syndrome is the mitochondrial condition that so cruelly stole Charlie from us. The mitochondria are the powerhouses in our body and account for 90% of the functions required to sustain life in our body. In most cases exercise/movement is a…
They say 3 months is one of the hardest times
I’m honestly not sure Charlie what I came to write tonight. Every so often lately I come here but I don’t write anything. I know it’s been a while. I think to some degree I’ve moved to talking to you where I can. So this is becoming more of a place to let people know…
Time
Charlie, I’ve had a few thoughts I’ve wanted write but I’ve been getting headaches daily this week. It seems my pain has moved from my knee to my head and my gut but it never leaves my heart. I also have sat down and struggled to decide which of these thoughts I wanted to talk…
Charlie’s Story
Trigger Warning: Hospital details, death, Charlie’s final days. Photos – happy and hard ones. It’s amazing what you will take photos of when it’s the last photos you will get to take of your child. I didn’t share the most painful ones. We have a diagnosis now officially for Charlie confirming Leigh’s disease. I have…
ANXIETY ON FIRE
There might be two posts today it all depends on what happens this afternoon. Today we meet with the genetic neurology and metabolics clinic with the neurologist who came to the belief Charlie had Leigh’s. We technically at this point have not had a confirmed diagnosis. Today we find out the results of the last…
2 months gone.
The hardest part of it all was the end. When everyone was gone. I started going through the pictures and the pain of you not in your own birthday pictures hit. The evening was painfully quiet.
Charlie’s “Untapped Potential”
Hey little manWere you at recital on Sunday? I didn’t have any screamingly obvious signs but that day I knew you were. Mommy hasn’t danced in a recital since I was like 4. I was getting a little nervous because ever since you’ve been gone I’ve been having knee pain. There were 4 shows on…